Many thanks again for answering this. Perhaps that will provide so e reassurance. This valve repair option is one that might best be pursued at a center that specializes in this problem. Another possibility that you havent mentioned deserves some discussion with your sons doctor(s) or surgeon. I have been checked by echo/CT every year for the last 7 years to monitor the progress of my valve regergitation and aortic aneurism. It is very informative. I dont know anything about crossfit but I see his times are average on that page. Max Page - Child Actor (Darth Vader in VW Superbowl ad) - Tetralogy of Fallot. To me, cardiologists are not sports people and air on being absolutely over cautious. Do you opration? The doctor said it wasnt serious, but that I should keep watch on it every year. . I dont know what to do .. I would really like to know if I can (or shouldnt) push myself as hard as I used to. http://games.crossfit.com/athlete/39565 Problem is, Im getting older (52) now and Im wondering the effect age, and should I be asking for more frequent followups. Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. Mild to moderate ai Thanks so much I dont train a lot, like 2k bike, 500k run and 100k swim yearly and few competitions sprints and one half IM in a year (32 years old). Best to mention your participation in the marathon when you have the tests done. The studies on Irbesartan for Marfans(I dont have Marfans) are showing some positive outcomes; and. I can tell my story. No information provided by Baldwin Publishing, Inc. in any article is a substitute for medical advice or treatment for any medical condition. I didnt get it.". My son is 15 and has grown about 4-6 inches in the last year. This award-winning website has helped over 10 million people fight heart valve disease. I have recently found out that I have aortic regurgitation will soon be needing surgery. 2k erg test. I am considered elite in my age division. My aortic root is 4.06 cms. He is on meds to slow it down. that suffer from heart valve disease along with a link to the reference story about their heart valve disease and their Twitter handle can be found below: ), the famous American television anchor, suffers from, ), the Olympic Gold Medalist (Soccer) suffered from, ), a comedian and broadcaster, suffers from a. The cardiologist doesnt do the surgery we have to go to another province to have surgery. I wish you both all the best. For some reason I did not receive a notification of your reply, so apologies that I havent thanked you before. ODonnell, now 54, said her heart attack began after she helped an enormous woman struggling to get out of her car in a parking lot. Doc says no problem, but that seems to be contrary to what I see here. For example, are there data that shows what happens to aortic diameters once sports have been stopped? This can be very frustrating to athletes who are used to being more active. Thanks for the infoI really appreciate what you,have to say. (Have you heard of the studies by Dr. Thanks very much. Advertisement. Thank you for taking the time to respond to everyones concern. CT or MRI may be more accurate. Is there anything we can do? Today at my hospital, we do most 1st time aortic valve replacements for aortic stenosis (narrowing) this way and have started using TAVR for patients with previous AVR using tissue valves who need re-replacement. Moreover, there is a myriad of operations that such patients may have had, each with its on set of considerations. I am big for my age . In general, we recommend no weight lifting in patients with BAV if the aortic diameter is greater than 4.0 cm. Medical therapy may be useful to slow or halt the progression of aortic valve disease and aortic enlargement by reducing the blood pressure and the blood pressure across the aortic valve. (I am on a low dose beta blocker) Is it possible that the valve will get loose? At this time, it is not known whether Arnold received the new valve using a surgical aortic . For many patients, I recommend no heavy lifting (>10 pounds) for the first month after conventional heart surgery. The valve will become healed (scarred) into the surrounding heart tissues with the passage of time. Also, again, no stenosis or regurgitation, 35 mm ascending aorta. However, I absolutely love being competitive at running, and dont want to jeopardize that either. And any valve substitute (with valve replacement) is clearly not as efficienteven if the substitute is better than a diseased valve. In patients needing valve replacement because of stenosis or regurgitation, the aorta should be repaired or replaced if the aortic diameter exceeds 4.5 cm. Search for heart hospitals that specialize in heart valve treatment. It usually consists of three flaps of tissue what are called valve cusps. Bicuspid aortic valve (BAV) is a heart problem present at birth and the most common congenital cardiac anomaly, with an estimated incidence of 0.5 percent to percent in the general population. Celebrities With Heart Disease - Celebrity Heart Health Survivors. There were some procedural differences between the bicuspid and tricuspid groups. In your experience, can patients with BAV go a lifetime without having AVR? The doctor said she would see if she could talk about his case with the surgical panel but she said even if he did have surgery he couldnt have a career in sports??? Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. Baton Rouge, Louisiana 70808. Bicuspid aortic valve (BAV) is a genetic condition that causes the aortic valve to have two leaflets instead of three. And, of course, its important to monitor over time the function of the prosthetic aortic valve and the size of the aorta. Star Jones. Thats always the concern with new techniques with limited follow-up data. This gives a chance for the sternum, which was split during the operation, to heal completely. I was having chest pain and flew to Thailand to see what the issues were and they found I had GERD and Esophagitis. What are my chances of being able to go back to marathon running after surgery? Does the BAV with aortic dilatation and small leakage prevent the blood to flow less efficiently? Those with symptoms are usually identified (BECAUSE of those symptoms) in the first year or two of life. James Cameron checks in from Pandora with a status report. no symptoms yet please help. My cardiologist has advised that while marathon running is out, shorter runs (up to 6-8 miles) and pilates are both fine for now. Rhm, 43, tragically lost two of her family members to heart issues. My performance as a cyclistgiven my ageputs me in the elite category, although with the stenosis I am experiencing a definite decline in performance. I have no symptoms that I would notice, e.g. A 2nd opinion might help by bringing another set of eyes and ears to your problem. with an efficiency of 69%, I have an appointment with a specilaist next week and am just wanting some, even if vague, answers. Is that so, or can it be measured by the echocardiogram as well? Average STS score was 1.7%. After finding out about her heart disease, Braxton stopped eating unhealthy foods at night. I have recently had CT scan and MRI scan, following some chest pain experienced on track while doing marathon training. "The 1997 heart valve replacement was never meant to be permanent," stated Daniel Ketchell, a spokesman for Arnold. Im not a nurse or anyone who can help in any real way, she told PEOPLE, fighting back tears. In 1997, Dr. Starnes led a team of three surgeons who replaced the aortic valve in then-actor Arnold Schwarzeneggers heart. Thank you very much for writing such a thorough and well informed article. Since Im very active in sports, Id like to have your opinion on it. The problem is I have developed an aneurysm on my ascending aorta of 44mm. The false lumen extending into the abdominal aorta was left since the point of origin in the ascending aorta was repaired. We were to see them in 3 months. This site complies with the HONcode standard for trustworthy health information. Details of my condition: I am now 60. It seems to be a very interesting option for those who have aortic dilatation due to Marfan or BAV (which is my case). Im a 30 yr old male, training 5 times a week rowing and strength training. Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); Most probably not pericarditis cause I had it once so I know that pain type, but again, maybe its some other type. Ive heard from a fair number of endurance athletes after having aortic valve operations of one sort or another. Im keeping my heart rate below 150, 160 at most but just for short period of time. I just thought it was muscle strain., My body cleared the blockage itself, said the game show host, who credited the aspirin he was taking for what he thought was simple muscle pain. The surgeon I used told me that he had performed keyhole surgery once but wasnt sure if it would be of much benefit to me. Depending upon the size of the prosthetic valve, there is so e built-in obstruction to blood flow that is e aggregated during exercise. Thank you so much. But, three heart valve surgeries! An article at Endurance Corner about Normann Stadler, A blog post about elite triathletes and heart problems, Aortic stenosis and bicuspid aortic valve (BAV), http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png, https://academic.oup.com/ejcts/article/50/3/400/2197426, If there is enlargement of the beginning portion of the aorta to greater than 4.0 cm, the individual should have a. I have only played a few games of football in the last 5 years due to a knee injury but I have continued running for fun and do 5k in a reasonable 25 minutes. I agree that its somewhat surprising that more detailed information isnt available. That means it is a congenital heart defect. Hi Larry After an echo and an MRI with and without contrast, I found out that I have a BAV with mild aortic and pulmonic valve regurgitation. I have also been advised that running intervals at over 80% max heart rate would not be sensible. He wants to be normal. We live at 6,500 ft (elevation) so Im not sure if its affecting my blood pressure when doing normal things. I am now in no mans land of not needing immediate surgery (per the pressure number in left ventricle) and not being able to run more than 30 min. Either way I often think my cardiologist looks at me as if Im nuts and that my current 175 miles a week training should be thought of as beyond expectations post open heart surgery. Im doing cardio as they said thats fine and I was lifting free weights tonight of 10kg. Thanks, Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. Ad Choices, Blood molecules as they exit the left ventricle: I'll be back., The 42 Best Romantic Comedies of All Time, The 25 Best Shows on Netflix to Watch Right Now. It makes the heart work harder than it should. Mild aortic valve disease without symptoms may only require frequent health checkups. To continue to live this amazing life so full of challenges and friends, including so many of you in the audience, I have chosen to replace the valve with a new one. Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. Approximately 1%-2% of the population are born with an aortic valve that only has two cusps. Learn more about Baldwin Publishing Inc.editorial policy,privacy policy, ADA compliance andsponsorship policy. In the simplest terms, a bicuspid aortic valve can be a serious heart valve disorder in which the valve only has two leaflets, or flaps, that control blood flow through the heart. I have not had any issues since my surgery. But, while doing my cardio stress test they discovered that I have a Bicuspid Aortic Valve. Aortic stenosis will limit athletic performance at the top end. My daughter (16 y/o) has a St Jude mechanical mitral valve (adult size valve even though she has had it for 7 years). I first wrote about BAV in a short post here at the blog back in 2009. Now I wanted to start again (also due to the 8kg I accumulated in the meanwhile:( ) and I discovered that I can barely run 5K in 30 min and I generally find it very difficult to run. Im not looking forward competitions nor marathons. My aorta diameter is 4.0 cm and has increased by 0.8 cm (from 3.2 cm) in the past 5 years so the diameter is increasing rapidly. Apparently this can work better than Losartan? I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. I am a 48yo competitive cyclist who is very concerned with being able to return to my former ability to hit high effort levels following open heart surgery. The fusion (sticking together) of the valve leaflets causes abnormal valve opening and closing. Hey is a frustrated guy. My resting pulse is 55 and BP 115/82. I seen my cardiologist yesterday and this is the first year in 4 years that the aneurysm hasnt grown a mm. Is this true that you wont be symptomatic with only mild AR? You are a very good man. While I recovered from surgery just fine, my return to my normal activity levels has been hampered by recurring arrhythmias, muscle atrophy during recovery, medication,and general inability to exert myself like I could prior to surgery. These techniques are most applicable to situations in which there is regurgitation, rather than stenosis, of the valve and when there is also enlargement of the aorta. Without careful study, I dont know what the true risks will be. No LA, RA, RV, chamber dilation Patients whove had aortic valve replacement and/or replacement of the aorta will require life-long monitoring by their doctor, with periodic echocardiogram and/or chest CT scanning. This has caused me a great deal of anxiety because I feel like I am being told to act like an old man before my time. I played competitive amateur football (soccer) on Saturday and Sunday from age 16. His story is typical. Reply. I know it can be frustrating when you get conflicting opinions regarding the safety of exercise. He seen our family doctor that week who confirmed the murmur. So I saw an incredible surgeon and we are going for the Ross Procedure in Feb. Now that we know the type of surgery does this improve my chances or one day returning the CrossFit addicted life I miss? He is now 15. The mechanical valve conduit replaces the valve with a mechanical valve and the aorta with a Dacron fabric tube. I had a ventricle septum defect patched up shortly after birth with no further follow up and a full recovery. I have read that strength training is beneficial for heart health. New guidelines from the American College of Cardiology (ACC) were published just this week. Thanks! EKG and echocardiogram were done showing BAVD. Went through the process of antibiotic therapy and. Looking forward to hearing your thoughts. Do you have a congenital heart defect? Again, there are ACC/AHA guidelines for when operation is needed: Sometimes more than one indication for operation may be present, so there is the additional guideline for patients who need operation for aortic stenosis or regurgitation: I know from discussion with athletes over the past few years that there are differences of opinion among cardiologists and heart surgeons about these guidelines. I know that heart surgery can be scary.but I also know that for the vast majority of patients with these conditions, surgery goes well and the outcomes are good. While the defective valve may be easy to see, the defect also causes changes in the tissues of the aorta and the heart. His doctor recommended he see a pediatric cardiologist within 1-2 weeks but when I called they cant get him in until April 14th. March 10, 2016 at 1:50 pm. I was only diagnosed with BAV after a routine examination and only because my company has increased in size above a threshold at which all employees are supposed to be subjected to this examination (weird law in Belgium). Then, Arnold's pulmonary valve was switched to the aortic position. No operation to replace/repair the aortic valve and yo replace the ascending aorta is minimally invasive. Thats just a marketing gimmick. I made appointment with my cardio, to clear that up, dont worry :). Contact Editor. mod-severe regurgitation Bicuspid aortic valve is the most common congenital cardiovascular anomaly, occurring in 1-2% of the population. To much info to much detail so much information and advice. My consultant informed me that, because of my age, I would have a mechanical valve fitted which meant that I would be on warfarin for life and therefor not be able to play football. Use or viewing of any Baldwin Publishing, Inc. article signifies your understanding and agreement to the disclaimer and acceptance of these terms of use. 1 year ago I gave up smoking and started endurance running. You would never know meeting these celebrities that they had a CHD. For healthy individuals who have BAV with no other heart or aortic problems, follow-up imaging with echocardiogram and/or CT could probably be undertaken annually, or perhaps less often once stability is ensured. Do you think the jiu-jitsu (e.g. When we go back to re-replace a patients prosthetic valve, for some reason, it usually has to be chiseled out from the heart. I cant imagine life without activity, but Im not fool to risk my life, not any more anyway :). Jeffrey Howell didn't know he was born with a bicuspid aortic valve until December 2015. After the first month, patients are generally allowed to return gradually to all of their previous activities. At approximately three months I became very ill and was diagnosed with prosthetic valve endocarditis. Hi Sean, "I had many of them, but I thought, 'Nah.' BAV is present at birth (congenital). These leaflets open and close to regulate blood flow from the heart into the aorta, and prevent blood from flowing back into the heart. Think to report back to let us know how things go for you, personally. Are there any things I can do now to help minimize my risk? Thats the reason we try to place the largest possible substitute valve in patients who need replacement. So it's got the Rock and Roll Hall of fame and great doctors. Since Im not close to good medical care, are their specific things that I will start to notice if my heart valve is causing a problem? I used to do HIIT and moderate to heavy weight 5 days a week before my physical complications. I guess my marathon training is officially over, but i hope that i still keep doing some sport and i dont mean bowling, no offense for who practice it ;). I dont think theres a way to predict the future in this circumstance. Thank you for your time. I love running. One doctor to told me just to control it and train as I like but the other one said that with those hearts parameters I will have only 1-2% to have operation in the future but if I will continue to do triathlon for sure I will have to have one. My cardiologist gave me green light for everything except strenuous exercise (used to train for ironman and similar challenges). When the aorta is enlarged in the setting of BAV, there are a couple possibilities: the valve needs to be replacedor it doesnt: Valve repair. Post 2 years and Ive yet to get back to my high level of racing fitness and wanted to see what should be expected. Although the vast majority in each group (97%) underwent TAVI via the transfemoral approach, bicuspid patients were less likely to receive conscious sedation (57% vs 62%) and more likely to be treated with the largest 29-mm valve size . I would like to get back into it, but obviously I have been having some concerns. Rather than just sit there and do nothing about how much I missed [my mother], I put all of that pain, sorrow and longing for my mother into helping educate and make people aware. I started experiencing palpitations last year along with several instances of light-headedness. In your case, though, the infection might well influence the healing process. I would really like for people to not have to experience what I had to experience, she continued. Dear Dr Creswell you seem to be such a kind cardiac surgeon to make yourself available in answering questions. Ed Helms - Actor - Undisclosed CHD. 2; (Yes, I have been going for regular check-up since in was about 7 years old. The surgery was a full success, and the valve is closing really well now. We expect the current generation tissue valve to last at least 12-15 years before problems. My father has struggled with heart disease since he was 50, and I lost him [in 2008].. I was diagnosed with BAV about four years ago now by fluke whilst looking into my high blood pressure (I was only 24 at the time so I underwent a lot of testing due to my age and HBP the conclusion was it is hereditary, with many members of my family with HBP). Or its the result of the cumulative effect of the aortic and mitral valve leakage? O'Donell took the aspirin recommended for people who think they are suffering a heart attack just in case, but didnt call 911. Baldwin Publishing, Inc. strongly suggests that you use this information in consultation with your doctor or other health professional. Will I need surgery? We dont have a crystal ball, though. I would think that, ordinarily, a homograft would heal up along a similar timeline to other types of valve/aortic root replacement. Do you have any info or recommendations about this? Whether 130 beats per minute is a good cut-off truly isnt known. I cant thank you enough for your responses to all the above questions. According to reports (and my new cardiologist), this congenital variation . "I Googled 'womens' heart attack symptoms,' " her blog post continued. His cardiologist said, i am sure he can play a full game with new issues but I have to go with new guidelines and indirectly left it up to me to make the decision which moved him to mild /moderate and put right at the Borderline. I was also advised that it is really the static weight-lifting that could pose a problem. 27yr old male. Unanswered questions include: Can a bioprosthetic valve wear out more quickly than expected? Enlargement of the left ventricle can be an indication that the heart suffers from the aortic regurgitation, even if the regurgitation doesnt produce symptoms like shortness of breath. Ordinarily, race walking is considered to be in the same category of activity as long-distance running. I had an exercise tolerance test recently and they seemed happy with my results so fingers crossed thats a good indication I can carry on training hard! March 7, 2023, Rob Riley He posed next to statues of Thomas Jefferson, Jesse Owens (whose family moved to Cleveland when he was nine, and who later attended The Ohio State University), and Abraham Lincoln. Enjoy! With so many similar stories, do you know why there is not more statistical data or studies done with regards to sports and BAV and changes in aortic diameter? Im wondering if you can advise me. Seems unlikely to me that there would be lingering effects that would make an EKG or chest x-ray abnormal. Less than one month ago Schwarzenegger was (virtually) hosting the Austrian World Summit of the Schwarzenegger Climate Initiative, which introduced speakers like Prince Charles, Jane Goodall, and Pakistani Prime Minister Imran Khan. ), Your email address will not be published. Im followed by a cardiologist who only says not too much weight lifting.. That said, guidelines from the 36th Bethesda Conference suggest that BAV, without enlargement of the nearby aorta or problems with the aortic valve, shouldnt preclude any sports activities.including weight lifting. Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. Normal biventricular size and function, no scar. The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. Jeff/Doc, How are you? There are many surgical options depending upon the particular circumstances. Is the biggest risk (from numbness) a over-calcified valve which would cause lack of blood flow? While I do expect to have a replacement done later in life, the repair was the best decision I could have made. Those figures are funny to me because before I was doing three or four times more intense training beside my job (air force pilot). However, his ascending aorta has been enlarging: 11/27/13 31 mm (echo), 6/10/15 39 mm (echo), 7/8/16 41 mm MRI). I am 6ft 3 . Hey was born with BAV and moderate regurgitation and stenosis, and dilatation of his ascending aorta. Its also clear-cut that patients with significant enlargement of the aorta to greater than 5.0 cm need operation for replacement of the aorta. In some cases, bicuspid aortic valve causes another condition called aortic valve stenosis. California Governor and movie star of films including The Terminator and The Predator, Arnold Schwarzenegger marked the 10-year anniversary of his heart surgery at USCs Health Science Campus. Hi dr. The typical symptoms are fatigue or shortness of breath, particularly with exertion. Some people with bicuspid aortic valve will have symptoms in early childhood. Practice Essentials. Do you think I should slow down a little bit? Here are some celebrities that experienced severe heart valve defects and had to have either heart valve replacement and heart valve repair surgery. Women are 50 percent more likely to be given a wrong diagnosis after a heart attack and are at a greater risk of dying within a year of a heart attack than men. My son is a very active and healthy 14 year old. Consensus guidelines suggest that athletes with mild aortic regurgitation and no other heart problems can participate fully in their sports. During pregnancy. Some good points there, Craig. I have regular checks, 12 to 18 months, and until about 3 years ago was told that it was hard to tell that Id had a replacement valve, it now shows slight stiffening. Hi . Hope to hear back soon. I am a 36 yo male who was first diagnosed with BAV at the age of 17.

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